Merrill and Roberta Simon and Family

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Surprise! __________

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What a thing to hear, to process, to fully understand. I thought the statement was a crazy thing to say to a mom!!! That was just what Joe Haas said to me many years ago. Maybe it was the harsh reality of children  with Fetal Alcohol Syndrome. Now that is better known as FASD. Who really knows?? Fast forward many, many years now. Maybe that statement is more true than ever. Merrill and I now have many adult children that have made a somewhat successful transition to living on their own. Please do not read it has not been without more than a few bumps in the road, for there have been many. During their transitions, our pain has been nearly unbearable at times. We have often wondered why did things have to be this way. What did we do wrong? What could we have done differently? Why does there have to be so much pain?? We have come to figure out that it is all part of the journey. That sounds funny, doesn't it? As child, most of our children were very impulsive, guess what, as a

And I still miss her. I was 28 years old. Merrill and I had just celebrated our 8th anniversary. My mama had sent me a beautiful card and wrote in it that we could celebrate once we were back together....Merrill was away with the military.  We had one child and my mama was looking into how to help us get pregnant.  She was strong. She was independent. She was a business woman. She loved the underdog. She loved a challenge. She had a fantastic mind. She made more than her fair share of mistakes. She owned up to them. She was complex. She was passionate. She loved my dad. She hated my dad. She and my dad were nearly an unstoppable team. She had lost a child. She was 58. She was happy. She was at peace. She was honest to the core. She was a believer. She loved her Lord and Savior.  She knew July 10th would be a special day. Did she know that was the day she would meet her Savior face to face?? I will never know the answer. She helped to mold me into the person I am today. I

These three little words that I posted on Facebook evoked a lot of emotions. Jericho's life matters. Why did I post those words?? Reality, Jericho had emergency surgery on July 8th. As I am writing this, he is still in PICU on a vent with no end in near sight. He is one sick boy, not a little boy, but soon to be an 18 year old man. I felt that the ones who should care about Jericho, did not. I felt that the ones that should be visiting Jericho were not. Bottom line, I spoke out as a mom in pain, hurting and tired. But you know what, God is in control. A wonderful person reminded me not to let negative thoughts enter my mind. She was and is right, but still, Jericho's life matters. Jericho has Cornelia de Lange. He also has PICA. PICA is what put him here. It is the uncontrolled need to eat things that are non food items. We spend each and every day pulling things out of Jericho's mouth. Even the younger kids know to holler when they see Jericho trying to eat something. It i